“The NIH’s Cozy Relationship With Big Alcohol Is Bad for Science”
by Ed Cara
Gizmodo, 4 April 2018
The National Institutes of Health is facing more allegations that it’s in Big Alcohol’s corner. Not only has the agency been accused of begging the alcohol industry for money—using a sales pitch that implied their results would likely be favorable to the industry, according to a March report from…
“This is What Your Phone Does With Your Personal Health Data”
by Mark Henricks
Shape, 23 August 2017
Smartphone apps are a beautiful invention: From tracking your workouts to helping you meditate, they can make life a helluva lot easier and healthier. But they also collect a treasure trove of personal information. And despite increasing scrutiny of privacy practices, many apps still do whatever they please with that…
“Gene Editing: How Much Justice Delayed or Denied?”
by Nicholas G. Evans
Impact Ethics, 2 December 2015
The International Summit on Human Gene Editing: A Global Discussion is a three-day event convened by the Chinese Academy of Sciences, The Royal Society, the United States (US) National Academy of Sciences, and US National Academy of Medicine. The Summit has a live webcast, a vibrant Twitter hashtag, and is…
“The Privacy and Consent Issues with Apple’s New ResearchKit”
by Laura Northrup
The Consumerist, 11 March 2015
Earlier this week, Apple gave us wrist computers and took away almost all of the ports in its notebook computers, and also announced something that gadget fans may not have expected: a set of apps called ResearchKit designed to help medical researchers collect data from ordinary citizens for their research…
“The Tension at the Heart of Open Health Oversight”
by Adam Henschke and Nicholas G. Evans
The Conversation, 19 December 2012
[syndicated]
Open health is the intersection between health care and information communications technologies. We’ve previously talked about what it is and why people should care about it, the problems that may occur, and examined some of those problems in detail. Here we will consider the oversight of open data systems…
“Diagnosing the Inequality Problems of Open Health”
by Adam Henschke and Nicholas G. Evans
The Conversation, 12 December 2012
[syndicated]
Open health programs create a range of ethical concerns. Some of these are old, and some are new; some need action now, and some need a longer view.
Responding to these concerns requires the use of a limited pool of human and physical resources. So we need to start by…
“Open Health, Privacy, and the Digital Divide”
by Nicholas G. Evans and Adam Henschke
The Conversation, 29 October 2012
[syndicated]
Open health refers to a set of developing information technologies that make it easier for patients, professionals and administrators to access health-care information or make it anonymous and open to the public.
This is done by integrating existing health-care records and data. It is hoped the result will be more…
“Open Health: What is It and Why Should You Care?”
by Nicholas G. Evans and Adam Henschke
The Conversation, 1 October 2012
[syndicated]
“Open health” captures a broad set of information technologies that will change the way we approach health and health care. It encompasses “ehealth” (the storage and provision of personal medical information online) but also includes the release of health information to the public at large. It’s the health side of…
“Forget Profits. Universities Need Morals.”
by Nicholas G. Evans
The Conversation, 3 August 2011
[syndicated]
Steven Schwartz, vice-chancellor of Macquarie University, recently claimed that universities should break from being treated as businesses and recapture their moral purpose.
He used the example of Jonas Salk, developer of the polio vaccine, identifying Salk’s discovery and subsequent open licensing of it as an act that defines the ethical…